Boy, 3, battling rare brain condition that left him unable to stand or eat alone

Nicoleta Ionescu, 36, from London, recollected the shattering moment her “world changed” as an MRI scan found her son suffered from a rare brain condition that left him unable to stand or eat alone

A mum has spoken of how her “world changed” when she discovered her toddler son had a rare brain condition that left him unable to even hold up his neck alone.

Nicoleta Ionescu, 36, from London, described how the first nine months of her son David Draghici’s life had been the “happiest in the world”.

Till then, their household in Edgware had been full of you and David seemed to be growing just like any other baby, MyLondon reports.

But by the time David reached nine months old, his parents realised something wasn’t right as their son couldn’t stand, eat or even hold his neck up alone.

The terrified parents brought David in for an MRI scan immediately, with mum Nicoleta saying her “world changed” when the results came back.

In a heartbreaking discovery, David was found to be missing a nerve fibre called the corpus callosum which stretches across the midline of the brain.

This had caused a rare brain condition only affecting one in every 10,000 children, meaning his development had been significantly delayed.

Aside from this, David also deals with hearing loss and severe asthma, meaning it is often difficult for him to live the life of other boys his age.

David’s family were at a loss as they had no clue what the future held in store for their son.

However, with the help of a number of different therapies, David’s condition is improving every day.

Nicoleta said: “Three years ago, I didn’t have any little hope that my son would be able to do what he is doing now. He’s progressing, slowly.

“I’m happy with the progress he’s made in the last one year, but all this progress costs me lots of money.”

Now three-and-a-half years old, David is still almost totally non-verbal and is only able to say the word “mama”.

David’s parents have nonetheless seen huge improvements in his condition thanks to occupational, speech, language and musical therapies and swimming lessons.

But the therapies are costing Nicoleta and her husband a lot of money, so a crowdfund has now been launched to raise funds to keep funding the critical treatment.

“My son is happy – he’s happy with everybody. If you show him that you love cuddling him, playing with him, he will give back to you.”

“He loves music and he likes the water so much,” Nicoleta said.

David will have to be monitored for the rest of his life to keep track of his condition, and Nicoleta is waiting for results of genetic tests to see if his condition is something he will be able to pass on to future generations.

Thanks to the therapies David has received, he is now able to walk and is starting to express himself in small ways, but the process has been lengthy.

Although David’s family can now “see the light”, they pleaded with the wider public to contribute to their cause to make sure their son can keep getting the care he needs.

His parents said: “We just need help. Please give your support to my son’s future to be more independent.

“We thank you from the bottom of our hearts.”